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anyone here have lupus?


does anyone here have lupus?  my mother has had it for a while and i was wondering how others deal and cope with it.

Entry #1,313


Comment by scorpio - March 18, 2008, 7:43 pm
no,but my wife has another bad disease,cicatritial pemphagoid,and takes steroids,etc. to stay alive.
Comment by pacattack05 - March 18, 2008, 7:48 pm
I'm sorry to hear about the condition of your wife scorpio. Speedy recovery scorpio.
Ms. PatComment by Ms. Pat - March 18, 2008, 8:09 pm
My fifteen year old grandson has it. He takes mild steroids. He was diagnosed last summer when his hair started to fall out and his gums started to bleed. He is also under a strict diet.....
Comment by LOTTOMIKE - March 18, 2008, 8:43 pm
my mom can't take the steroids,she isn't supposed to be smoking but chain smokes,i'm a nervous wreck between her and my girlfriend who just got approved for disability herself due to a car wreck that made it hard for her to walk.having a bad day.
Comment by LOTTOMIKE - March 18, 2008, 8:44 pm
i'm fixing to be home all week and strictly working weekends,strange thing is i thought i'd love working less and i hate it.the downtime is driving me crazy.
ThatScaryChickComment by ThatScaryChick - March 18, 2008, 8:45 pm
I'm sorry LottoMike. I hope things start looking up for you. Sorry, but I don't have any experience with Lupus.
Comment by LOTTOMIKE - March 18, 2008, 9:48 pm
i'm keeping the faith scarychick.times are hard but its life.
emilygComment by emilyg - March 19, 2008, 12:19 am
justxploringComment by justxploring - March 19, 2008, 12:28 am
There are a lot of online support groups for lupus, Mike.
justxploringComment by justxploring - March 19, 2008, 4:56 pm
Mike, don't mean to get negative here, but maybe you can use some tough love on your Mom. IIRC, you said she is a heavy smoker. Of course people need to want to quit or you can't do anything for them. Although many people who suffer in pain will say that the smoking brings them comfort, it's still a bad excuse. My next door neighbor looks terrible. 4 years ago when he was diagnosed with lung cancer he must have had a chance, since he's lived for so long. But he'd suck down a pack or 2 after chemo & radiation and now smokes more than ever. Anyway, print these out and show them to your Mom if she still smokes if you feel it's the right thing to do. Sorry for all the stress you are living under.


Comment by LOTTOMIKE - March 19, 2008, 6:48 pm
same thing here,jumped on her for smoking and then we fight,she has aged twenty years in the last five years.
Comment by scorpio - March 25, 2008, 4:22 pm
thanks pcattack05,my wife tried kemo,but couldn't take it,so we just hope it goes into remission.she's ok as long as goes to drs.regularly,and takes life saving new miracle drugs,steroids,etc..

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