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On Caregiving


Caregiving  is a topic very fresh  in my mind.  Right now, I need 24-hour care.  Since my health insurance doesn't cover caregivers, I take care of hiring my own - two caregivers at 12-hour shift at $288.00 per day.  I'lll probably go bankrupt in a very short time.

Yesterday, caregiver, neglected to lock my wheelchair and when she tried to transfer me from bed to wheelchair, the chair moved away, and I fell to the floor.  She hastily tried to pick me up and put me on the wheelchair, but again the wheelchair moved away.  Not only that, my Bi-pap (ventilator) attached to my nose got dislodged, and the bi-pap and humidifier fell to the floor.  Luckily, I had a visitor at that time to help out.  He was right there at the right time.

My point in talking about this is  that we do not pay much attention to caregiving, until we need it.  I know I did not.  There ought to be a way, but I don't know what.

Well, was just venting my frustration and helplessness, that's all.

Hope you all have a good day. 

Was watching the olympics, so far way to to - USA!

Entry #43


LottoVantageComment by LottoVantage - August 15, 2008, 5:13 pm
Csfb, know that you are in our thoughts and in our prayers. Trust in God and He will always be there for you. Hope everything gets better for you soon!
TigerAngelComment by TigerAngel - August 15, 2008, 7:26 pm
Honey, there are people around, more like angels, that love to take care of others like yourself. I had a good friend that loved old people and would work as a live in care giver for room and board only! Then when my aunt was terminal she wanted to stay in her home and they found a wonderful woman than moved in and cared for her. More recently my friend's mother had a wonderful live in care giver that stayed with her til the end. There is a way to find such people in the classified newspaper ads. The agencies charge too much. Have your friend help you find a person like this and check their references. That business with the wheelchair unlocked doesn't sound like a very "caring" person to me. Also, you may be able to find such a caregiver through local churches or groups or clubs. Good luck and God bless you. TA
emilygComment by emilyg - August 15, 2008, 7:53 pm
Contact nursing homes and see if some of the workers want to make a little extra. They'll be experienced. God Bless You.
justxploringComment by justxploring - August 15, 2008, 11:35 pm
When you were diagnosed, did you apply for disability? Once on Social Security you will qualify for Medicare.   

Don't let pride get in the way. As TigerAngel suggested, maybe a local church or synagogue knows people who can help.

I am sorry you are suffering so much.
csfbComment by csfb - August 16, 2008, 5:34 pm
I appreciate your comments and prayers. They mean a lot to me.
I'll heed your suggestions and work on them right away. Will keep you posted.

No, I did not apply for disability only because I have a hard time grappling with this disease. Perhaps I am in DENIAL or as you said, justx, my pride gets in the way. Frankly, I am trying to create a vivid vision in my mind that one morning I will wake up and find I am in good health and what I am experiencing right now is just one nightmare. Wishful thinking perhaps. But I'm a dreamer.

Why I was meted out with this disease, our Creator only knows. But my chaplain visited the other day and reminded me that the Lord does not give you a trial, you cannot handle. Maybe, but for how long? He reminded me of the story of Job.

Oh well. I better close here. I have a tendency to get carried away and wax philosophical.

Thanks again, guys.
Ms. PatComment by Ms. Pat - August 16, 2008, 11:11 pm
I am currently primary caregiver for my 90 year old mom. It is hard doing 27/7 but she is terminally ill with colon cancer..I don't mind and she took care of my grandmother until she passed. Caregivers are special.....

Ms. pat
csfbComment by csfb - August 18, 2008, 3:06 pm
I hear ya, Ms. Pat. Caregiving is hard work, yet very fulfilling. Wish I could have given more time to my parents when they were ill.   Though I loved them so much, I DIDN'T REALIZE, I could have done MORE for them...I could have given them more massages, more hot towels, more presence... just more of me.

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